Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare ("nonsense") mutations of cystic fibrosis (CF), a genetic disorder that generally affects a person's lungs and digestive system. The foundation has raised over $1 million, largely from viral fundraising through universities and video campaigns. The organization also participates in exploratory research initiatives aimed at understanding and advancing towards a cure.
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| - Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare ("nonsense") mutations of cystic fibrosis (CF), a genetic disorder that generally affects a person's lungs and digestive system. The foundation has raised over $1 million, largely from viral fundraising through universities and video campaigns. The organization also participates in exploratory research initiatives aimed at understanding and advancing towards a cure. (en)
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| - Emily Kramer-Golinkoff (en)
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| - Accelerating cystic fibrosis research to save lives through the power of community, with a focus on "nonsense" mutations (en)
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| - Emily's Entourage is a nonprofit organization that raises money and awareness to help find a cure for rare ("nonsense") mutations of cystic fibrosis (CF), a genetic disorder that generally affects a person's lungs and digestive system. The foundation has raised over $1 million, largely from viral fundraising through universities and video campaigns. The organization also participates in exploratory research initiatives aimed at understanding and advancing towards a cure. Emily's Entourage is named after Emily Kramer-Golinkoff, a woman with CF, who has been the focus of an increased trend of patients participating deeply in research on and advocacy for their own conditions. She was honored at the White House as a Champion of Change for "harnessing data to take account individual differences in people's genes, environments, and lifestyles into account to improve patients' health." (en)
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| - Accelerating cystic fibrosis research to save lives through the power of community, with a focus on "nonsense" mutations
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