About: Genetic Alliance

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Genetic Alliance is a nonprofit organization, founded in 1986 by Joan O. Weiss, working with Victor A. McKusick, to advocate for health benefits in the accelerating field of genomic research. This organization is a network of over 1,000 disease advocacy organizations, universities, government organizations, private companies, and public policy organizations. They aim to advance genetic research agendas toward health benefit by engaging a broad range of stakeholders, including healthcare providers, researchers, industry professionals, public policy leaders, as well as individuals, families and communities. They create programs using a collaborative approach, and aim to increase efficiency and reduce obstacles in genetic research, while ensuring that voices from the involved disease communit

Attributes	Values
rdf:type	Thing schema:Organization dul:Agent dul:SocialPerson agent wikidata:Q24229398 Organization yago:WikicatBiobankOrganizations yago:Abstraction100002137 yago:Group100031264 yago:Organization108008335 yago:YagoLegalActor yago:YagoLegalActorGeo yago:YagoPermanentlyLocatedEntity organisation yago:SocialGroup107950920
rdfs:label	Genetic Alliance (en)
rdfs:comment	Genetic Alliance is a nonprofit organization, founded in 1986 by Joan O. Weiss, working with Victor A. McKusick, to advocate for health benefits in the accelerating field of genomic research. This organization is a network of over 1,000 disease advocacy organizations, universities, government organizations, private companies, and public policy organizations. They aim to advance genetic research agendas toward health benefit by engaging a broad range of stakeholders, including healthcare providers, researchers, industry professionals, public policy leaders, as well as individuals, families and communities. They create programs using a collaborative approach, and aim to increase efficiency and reduce obstacles in genetic research, while ensuring that voices from the involved disease communit (en)
foaf:name	Genetic Alliance (en)
name	Genetic Alliance (en)
foaf:depiction
dcterms:subject	Biobank organizations 1986 establishments in the United States Genetics organizations
Wikipage page ID	8110639 (xsd:integer)
Wikipage revision ID	1038436702 (xsd:integer)
Link from a Wikipage to another Wikipage	Pseudoxanthoma elasticum Biobank organizations Charitable organization Victor A. McKusick Institutional review board Genetics Gene Ann Mercy Hunt 501(c)3 1986 establishments in the United States President (corporate title) Genetics organizations Chief Executive Officer Biobank National Center for Biotechnology Information Sharon F. Terry Genomic Tuberous Sclerosis Association Advocacy organization Advocacy organizations
Link from a Wikipage to an external page	http://www.geneticalliance.org/ http://www.biobank.org https://www.ncbi.nlm.nih.gov/sites/ga
sameAs	Genetic Alliance Genetic Alliance Genetic Alliance Genetic Alliance Genetic Alliance
dbp:wikiPageUsesTemplate	dbt:Authority_control dbt:Citation_needed dbt:Infobox_organization dbt:Reflist dbt:URL dbt:Who
thumbnail	wiki-commons:Special:FilePath/Genetic_Alliance_logo.png?width=300
focus	Genetic Alliance improves health through the authentic engagement of communities and individuals. We employ innovation through novel partnerships, connected consumers, and smart services. (en)
former name	Alliance of Genetic Support Groups (en)
founded date	1986 (xsd:integer)
key people	Sharon F. Terry, President and Chief Executive Officer (en)
logo	250 (xsd:integer)
tax id	521571905 (xsd:integer)
type	Charitable organization 501(c)3
has abstract	Genetic Alliance is a nonprofit organization, founded in 1986 by Joan O. Weiss, working with Victor A. McKusick, to advocate for health benefits in the accelerating field of genomic research. This organization is a network of over 1,000 disease advocacy organizations, universities, government organizations, private companies, and public policy organizations. They aim to advance genetic research agendas toward health benefit by engaging a broad range of stakeholders, including healthcare providers, researchers, industry professionals, public policy leaders, as well as individuals, families and communities. They create programs using a collaborative approach, and aim to increase efficiency and reduce obstacles in genetic research, while ensuring that voices from the involved disease communities are heard. They also promote public policies to advance healthcare. Genetic Alliance provides technical support and informational resources to guide disease-specific advocacy organizations in being their own research advocates. They also maintain a biobank as a central storage facility for several organizations who otherwise would not have the infrastructure to maintain their own repository. (en)
non-profit slogan	"Advocacy, Education, and Empowerment" (en)
gold:hypernym	Organization
schema:sameAs	Genetic Alliance
skos:closeMatch	http://www.grid.ac/institutes/grid.434656.6
prov:wasDerivedFrom	wikipedia-en:Genetic_Alliance?oldid=1038436702&ns=0
page length (characters) of wiki page	7060 (xsd:nonNegativeInteger)
key person	President (corporate title) Chief Executive Officer Sharon F. Terry
type	Charitable organization 501(c)3
foaf:isPrimaryTopicOf	wikipedia-en:Genetic_Alliance
is Link from a Wikipage to another Wikipage of	Dynamic consent List of rare disease organisations Genetic policy of the United States Health advocacy Newborn screening Access2Research Coalition for Genetic Fairness Inspire (company) Sharon F. Terry Newborn Screening Saves Lives Act of 2007 Sharon Kardia
is foaf:primaryTopic of	wikipedia-en:Genetic_Alliance

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