The Huntington's Disease Society of America is a US non-profit organization dedicated to improving the lives of those affected by Huntington's disease, an incurable, genetically transmitted degenerative disease of the nervous system that affects movement, thinking, and some aspects of personality.
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| - Huntington's Disease Society of America (en)
- Huntington's Disease Society of America (pt)
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| - The Huntington's Disease Society of America is a US non-profit organization dedicated to improving the lives of those affected by Huntington's disease, an incurable, genetically transmitted degenerative disease of the nervous system that affects movement, thinking, and some aspects of personality. (en)
- Huntington's Disease Society of America é uma organização sem fins lucrativos com o objetivo de achar uma cura para a Doença de Huntington. A Doença de Huntington é uma doença degenerativa incurável do sistema nervoso que afeta os movimentos, os pensamentos e alguns aspectos da personalidade. A doença é transmitida geneticamente. Os membros da sociedade desempenham ajuda e suporte para os pacientes e familiares afetados pela doença. A organização tem disponíveis mais de 40 cientístas de pesquisa e 17 laboratórios para a doença. A partir da organização tem-se feito testes para o diagnóstico precoce da doença. A empresa também proporciona garantias para doadores de fundos locais. (pt)
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| - Huntington's Disease Society of America (en)
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| - Huntington's Disease Society of America (en)
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| - Research into Huntington's disease and support for affected people and their families (en)
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| - The Huntington's Disease Society of America is a US non-profit organization dedicated to improving the lives of those affected by Huntington's disease, an incurable, genetically transmitted degenerative disease of the nervous system that affects movement, thinking, and some aspects of personality. The Huntington's Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington's Disease. Founded in 1967 by Marjorie Guthrie, wife of folk legend Woody Guthrie who died of HD, the Society works to provide the family services, education, advocacy and research for the more than 41,000 people diagnosed with HD in the United States. HDSA supports and participates in the HD Drug Research Pipeline, which develops potential therapies to treat and eventually cure HD; and HDSA also supports 50+ HDSA Centers of Excellence at major medical facilities throughout the U.S., where people with HD and their families receive comprehensive medical, psychological and social services, in addition to physical and occupational therapy and genetic testing and counseling. The Society comprises 50+ volunteer-led local chapters and affiliates across the country with its headquarters in New York City. Additionally, HDSA hosts more than 200 support groups for people with HD, their families, caregivers and people at-risk, and is a resource on Huntington's Disease for medical professionals and the general public. (en)
- Huntington's Disease Society of America é uma organização sem fins lucrativos com o objetivo de achar uma cura para a Doença de Huntington. A Doença de Huntington é uma doença degenerativa incurável do sistema nervoso que afeta os movimentos, os pensamentos e alguns aspectos da personalidade. A doença é transmitida geneticamente. Os membros da sociedade desempenham ajuda e suporte para os pacientes e familiares afetados pela doença. A organização tem disponíveis mais de 40 cientístas de pesquisa e 17 laboratórios para a doença. A partir da organização tem-se feito testes para o diagnóstico precoce da doença. A empresa também proporciona garantias para doadores de fundos locais. A organização foi fundada em 1967 como o Comitê de Combate à Doença de Huntington, por Marjorie Guthrie, cujo ex-marido, o cantor e compositor folk Woody Guthrie, faleceu nesse mesmo ano devido à doença. (pt)
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